STATEN ISLAND, N.Y. -- There is a connective tissue disorder that affects the bones, skin, lungs, heart, blood vessels and nervous system of one in every 5,000 Americans: Marfan syndrome. Members of ...

Schreiber High School senior Mazzy Sass is working to raise awareness about Marfan Syndrome, a genetic condition that affects the body’s connective tissue, which holds all the cells, organs and tissue ...

SCOTTSDALE, AZ — Beckett Hotchkiss, an 11-year-old boy, is bringing attention to a genetic disorder known as Marfan Syndrome. He's taken his push all the way to the capitol, with the hopes of better ...

HOUSTON – A former NBA draft prospect whose basketball career ended because of a rare disorder started a new job as National Walk Ambassador for the Marfan Foundation in Houston Thursday night. Isaiah ...

The European Medicines Agency (EMA) has designated allopurinol as the first orphan drug for the treatment of Marfan syndrome, a rare connective tissue disease which has no cure to date. This disease ...

Marfan syndrome is a genetic condition. It occurs because of a mutation (change) in one of your genes that develops before you’re born. It’s a type of connective tissue disorder, meaning it affects ...