Families in Upstate NY raise awareness and funds for rare syndrome
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Families in Upstate NY raise awareness and funds for rare syn…
4 weeks ago
Microsoft NewsWTEN Albany
41 reactions · 4 comments | Maylee is a first grade student at Murphy Elementary with Rett Syndrome. Rett syndrome is a rare genetic neurological disorder that affects 1 in 10,000 females (and even more rare in males). Maylee uses an eye gaze device to communicate and she loves being around all the students at Murphy! To celebrate Maylee and Rett Awareness Month, Murphy students wore their purple today! | Lapeer Community Schools | Facebook
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41 reactions · 4 comments | Maylee is a first grade student at Murphy …
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FacebookLapeer Community Schools
1.1K views · 43 reactions | Our loved ones with Rett enrich our lives! But as parents, grandparents, aunts, and uncles, we want so much more for them. Join the RSRT Cure Community to help us advance a cure. | Rett Syndrome Research Trust | Facebook
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1.1K views · 43 reactions | Our loved ones with Rett enrich our lives! Bu…
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FacebookRett Syndrome Research Trust
1.9K views · 20 reactions | Your child’s story is unique. The more families enrolled in the Global Registry and Citizen = the more accurate the databases become. You have the power to accelerate cures at your fingertips. Start checking your RettList today! ReverseRett.org/Aware | Rett Syndrome Research Trust | Facebook
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1.9K views · 20 reactions | Your child’s story is unique. The more f…
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FacebookRett Syndrome Research Trust
International Rett Syndrome Foundation on Reels
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International Rett Syndrome Foundation on Reels
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FacebookInternational Rett Syndrome Foundation
1.8K views · 61 reactions | As Rett Syndrome Awareness Month comes to...
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1.8K views · 61 reactions | As Rett Syndrome Awareness Month com…
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FacebookInternational Rett Syndrome Foundation
Rett Syndrome: Myths vs Facts Myth 1: Rett only shows up at birth. Fact: Most girls are born healthy-symptoms start later when they lose skills around ages 2–4. Myth 2: It’s autism. Fact: Rett is a rare genetic disorder caused by a mutation in the MECP2 gene. It’s different from autism but sometimes misdiagnosed as it. Myth 3: They don’t understand. Fact: Many girls with Rett understand more than they can express-their bodies just lock and don’t cooperate. Myth 4: There’s a cure. Fact: No cure y
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